NAF Archives

National Ataxia Foundation Hosts Congressional Briefing with Bill Nye, The Science Guy, to Raise Awareness of Ataxia and the Impact on Patients and their Families

November 19, 2024

Session focused on the importance of funding research and approving new treatments for rare diseases, especially those with no FDA-approved treatment options like Spinocerebellar Ataxia (SCA) Minneapolis, MN (November 19, 2024) – Today the National Ataxia Foundation (NAF) partnered with members of Congress to host an informational meeting for legislators, Read More…

Bill Nye The Science Guy Lends His Unique Voice to Raise Awareness of Rare Neurodegenerative Disease

September 25, 2024

The well-known science educator joins with the National Ataxia Foundation on campaign to build broad understanding of Ataxia, a progressive brain disease that impacts a person’s speech and movement. Minneapolis, MN (September 25, 2024) – Bill Nye, who has helped make science a part of pop culture for a generation Read More…

Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”

September 20, 2024

This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure. Minneapolis, MN (September 20, 2024) – The National Ataxia Foundation (NAF) and the Friedreich’s Ataxia Research Alliance (FARA) are pleased to announce that Congress has once again designated September 25 as National Ataxia Read More…

NAF Partners with Bill Nye on Largest Ataxia Awareness Campaign Ever

August 28, 2024

Bill Nye opens up about his personal connection to Ataxia, a progressive hereditary disease. He lost is father to Ataxia and has many family members who are affected, including his sister and brother. Bill Nye will share a series of 4 short videos to his 23+ million followers on social Read More…

NAF is Hiring a Community Services Coordinator

August 5, 2024

NAF is hiring a full time Community Services Coordinator. This person will play a crucial role in the management and enhancement of the organization’s network of support groups, aiming to improve the quality of life for individuals and families affected by Ataxia. They will oversee support group operations, build and Read More…

2024 United Against Ataxia Hill Day

July 21, 2024

Join NAF and our partners at FARA in advocating for Ataxia and rare disease related policies during our annual United Against Ataxia Hill Day on September 25th! Advocates will have the opportunity to attend virtual meeting with members of congress and their staffers to tell their stories and relay the Read More…

2024 NAF Research Grants

April 3, 2024

NAF Awarded a Record Number of Projects in 2024 18 Studies Funded Totaling $845k Funded! We had our most competitive year ever for Ataxia research grant applications! As a result of the generosity of our donors, NAF was able to fund a record number of Ataxia research grants in 2024! Read More…

NAF is Hiring a Regional Development Manager

April 1, 2024

NAF is hiring a full time Regional Development Manager. This person will be responsible for generating revenue via traditional non-profit revenue streams including major gifts, recurring gifts, planned gifts, individual giving, corporate and foundation giving, memorials, third party fundraising events and sponsorship procurement. This position will also assist with the Read More…

NAF Welcomes a New Board Member and Several Team Members

March 8, 2024

We’re thrilled to introduce some fresh faces joining our mission here at NAF! Meet our newest board member and the five staff who have joined our team this year. With diverse backgrounds, talents, and a shared passion for making a difference, these individuals bring unique perspectives and skill sets that Read More…

Celebrating a Milestone in Ataxia Research and Community Collaboration

February 15, 2024

Ataxia is complex; the diverse symptoms it presents makes every individual’s experience uniquely challenging. As a person ages, determining whether changes are caused by Ataxia or unrelated causes can be difficult, especially when symptoms impact the way a person thinks and feels. It is important to understand Ataxia’s impact beyond Read More…

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