To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.
We’re honored to have worked with Bill Nye the Science Guy to launch the largest Ataxia awareness campaign to-date!
In the series of videos, Bill Nye opens up about his personal connection to Ataxia. He lost his father to Ataxia and has many family members who are affected, including his sister and brother. He teaches people about Ataxia in his classic “science guy” style with simple information and light humor.
Check out all his videos at www.ataxia.org/BillNye .
Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:
Session focused on the importance of funding research and approving new treatments for rare diseases, especially those with no FDA-approved treatment options like Spinocerebellar Ataxia Read More…
The well-known science educator joins with the National Ataxia Foundation on campaign to build broad understanding of Ataxia, a progressive brain disease that impacts a Read More…
This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure. Minneapolis, MN (September 20, 2024) – The National Read More…
Bill Nye opens up about his personal connection to Ataxia, a progressive hereditary disease. He lost is father to Ataxia and has many family members Read More…
In clinical research, scientists design studies to learn more about diseases and answer questions about new treatment options. Interventional clinical trials are used to better Read More…
Guest Author: Ellie Martin Over the years, technology has become a widely used tool for therapeutic programs and rehabilitation research. By replicating real-life scenarios in Read More…
Guest Author: Ellie Martin Tai Chi is an ancient Chinese martial art that has been around for thousands of years and has evolved into a Read More…
Guest Author: Karen Winston Exploring the great outdoors has never been more accessible! Karen shares a fantastic opportunity that’s perfect for those eager to immerse Read More…
My name is Terrence A Reed Jr, retired U.S. Army. I also served in four combat zones (1 Afghanistan, 3 Iraq). Now that I think Read More…
I have a genetic disorder called Batten Disease-CLN2. Doctors don’t know why I didn’t start showing symptoms until I was in my forties- this usually Read More…
I was a high school baseball coach for 25 seasons and had a successful 20 years in as the Public Address announcer for all the Read More…
I was correctly diagnosed with genetic Spinal Cerebellar Ataxia in my early 30’s. Although I have been feeling the effects since my late teens (Not Read More…
CENTRAL TIME ZONE Explore a past NAF research grant awardee’s funded study, gaining scientific insights about their Ataxia research. Dr. Hübener-Schmid will present the research, “Development and Validation of a SIMOA-based Read More…
We would like to invite you to join our next virtual series of the Let’s Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Read More…
On select Thursdays there will be discussion-based presentations that foster social connectedness and promote overall health and well-being. Thursday, February 27 @ 3:00 pm (ET) “Benefits of positive affirmations“ Register HERE to Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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