Calendar of Events
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1 event,
Ataxia Resources and Discussion Support Group
Ataxia Resources and Discussion Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Tracy Fleming, Healthcare Inclusion Specialist
0 events,
2 events,
NAF Science Showcase: Dr. Hübener-Schmid
NAF Science Showcase: Dr. Hübener-Schmid
CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hübener-Schmid will present the research, "Development and Validation of a SIMOA-based mutant Ataxin-3 Immunoassay for biomarker studies in SCA3." Register: Click here. Research Lay Summary: Disease protein lowering are key therapeutic strategies for several neurodegenerative diseases including
Johns Hopkins Lets Move Virtual Event
Johns Hopkins Lets Move Virtual Event
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Description of program: · A virtual group exercise program focusing primarily on balance and movement coordination. (Exercises will be primarily in sitting with options for standing tasks pending
3 events,
Johns Hopkins -Thrive Together on Thursdays Wellness Presentations
Johns Hopkins -Thrive Together on Thursdays Wellness Presentations
On select Thursdays there will be discussion-based presentations that foster social connectedness and promote overall health and well-being. Thursday, February 27 @ 3:00 pm (ET) "Benefits of positive affirmations" Register HERE to attend this presentation and engage in thoughtful discussion on the topic of positive affirmations. Your words have power! Positive affirmations can positively impact our mental,
Finger Lakes Support Group
Finger Lakes Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Zoom Join Zoom Meeting https://us06web.zoom.us/j/82538567177?pwd=T5OOwT7wLxuwE42hGnUZu6iVlN7EmW.1
Lower Michigan Support Group
Lower Michigan Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
4 events,
Research and Treatment Development for ARSACS
Research and Treatment Development for ARSACS
CENTRAL TIME ZONE During this session, our expert will teach us how Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay or ARSACS is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important
Western North Carolina Support Group Meeting
Western North Carolina Support Group Meeting
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86297331619?pwd=NEI4OHhxM1JVZ0hseWg1TmR5b2o4UT09 Meeting ID: 862
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
1 event,
Coffee Chat for Parents
Coffee Chat for Parents
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
5 events,
Treasure Coast Walk N’ Roll
Treasure Coast Walk N’ Roll
EASTERN TIME ZONE The Treasure Coast Walk N' Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and
Los Angeles Support Group Meeting
Los Angeles Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Abilities Expo, LA Convention Center
St. Louis Support Group Meeting
St. Louis Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
Kansas City Support Group Meeting
Kansas City Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the second
Northern Nevada Support Group Meeting
Northern Nevada Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information https://us04web.zoom.us/j/5367570101?pwd=d0EwT1B1aE1teFlwZDhKOXNmVWF4UT09&omn=78730463622 Meeting ID: 536 757
3 events,
All About SCA4
All About SCA4
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SCA4, the typical diagnostic journey for those affected, and what to expect for clinical care. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
Global Support Group (Hope for Ataxia) – 1st Session
Global Support Group (Hope for Ataxia) – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
2 events,
2025 Annual Ataxia Conference
At this annual gathering attendees meet and learn from world-leading Ataxia researchers and clinicians, network, and reunite with old friends. Hundreds of people – from patients, to caregivers, to medical professionals – travel from all over the world to attend the conference. Attendees get the opportunity to learn about Ataxia subjects such as: research, genetics,
Lower Michigan Support Group
Lower Michigan Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
1 event,
Coffee Chat for Parents
Coffee Chat for Parents
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
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