Webinar
Calendar of Events
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All About the Cerebellum
All About the Cerebellum
CENTRAL TIME Many forms of Ataxia are caused by damage to the Cerebellum. This is the part of your brain that controls balance, coordination, and other complex tasks. In this session, we will take a deep dive into what the cerebellum is, how it works, and its structure. Register Now: https://us02web.zoom.us/webinar/register/WN_5PUSZre-TaGMwbS4E0k7XQ
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Coffee Chat for Parents
Coffee Chat for Parents
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
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Ataxia Research Explained: Mouse Models
Ataxia Research Explained: Mouse Models
CENTRAL TIME ZONE One of the common questions we get asked at NAF is why mice are used for ataxia research. If you have ever wondered about this, then this webinar is for you! In this session, we will discuss what information mice can tell us about ataxia and how these findings can be used
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All About ARSACS
All About ARSACS
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of ARSACS, the typical diagnostic journey for those affected, and what to expect for clinical care. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
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Global Genes and Child Neurology Foundation Patient Services & Resources
Global Genes and Child Neurology Foundation Patient Services & Resources
CENTRAL TIME ZONE Get connected to more resources provided by Global Genes and the Child Neurology Foundation. You will learn about the Child Neurology Foundation's Family Support Program is designed to help families with the emotional and social challenges of raising a child with complex healthcare needs. Through our Family Support Program, families can learn
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NAF Science Showcase: Dr. Hübener-Schmid
NAF Science Showcase: Dr. Hübener-Schmid
CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hübener-Schmid will present the research, "Development and Validation of a SIMOA-based mutant Ataxin-3 Immunoassay for biomarker studies in SCA3." Register: Click here. Research Lay Summary: Disease protein lowering are key therapeutic strategies for several neurodegenerative diseases including
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Research and Treatment Development for ARSACS
Research and Treatment Development for ARSACS
CENTRAL TIME ZONE During this session, our expert will teach us how Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay or ARSACS is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important
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